Young people who suffer from chronic pain and illness face tremendous obstacles.
This was really good.
the only thing i dont like at the end is “especially their parents, who often become their caregivers” or whatever the line is
part of the reason it took me so long to get diagnosed (with my sleeping disorders, with depression, with joint stuff) was because my parents brushed it off, thought it wasnt important, thought i was exaggerating, etc. not as much anymore, but they used to bring up how hard it is to deal with a kid who had a fucked up sleeping schedule. you know who it’s harder on? me. me me me me. I’M the one with sleeping disorders, I’M the one who literally never gets restful sleep, never feels awake, always has joint pain (my mom has joint problems but she gets flair ups. i can guarantee you, 98% of the time at least one part of my body is hurting, not including my head- chronic headaches. to be fair my mom and i both get those & have really bad allergies)
but goddamn its so hard on them. like yeah they have to pay for shit, but they arent the ones looking at a dead end future. how am i supposed to pay for shit or hell even move out if i literally cant wake up on my own due to my sleeping disorders? how does that make ME feel?
i get the sentiment of that line, just, it just alienated me. fuck.